UKHCDO Guidelines – Other Publications
The table below provides information on where UKHCDO Guidelines have been published and, where applicable, links to the publisher’s website from where the document can be downloaded (in Adobe Acrobat format); these are denoted as “PDF”.
A list of other relevant publications can be found on the ‘UKHCDO Guidlines’ page – click here to visit
A list archived guidelines can be found on the ‘Archived Guidelines’ – click here to visit
You may also download guidelines for working parties and research & publication from the links below
| Year | Ref | Title | Journal | Document | Link |
|---|---|---|---|---|---|
| 2015 | Haemophilia (2015), 21, 219–226 | The incidence of factor VIII inhibitors in severe haemophilia A following a major switch from full-length to B-domain-deleted factor VIII: a prospective cohort comparison | Haemophilia | Link | |
| 2014 | Blood. 2014;124(23):3389-3397 | Factor VIII brand and the incidence of factor VIII inhibitors in previously untreated UK children with severe hemophilia A, 2000-2011 | Blood | Link | |
| 2007 | Haemophilia (2007), 13, 149-155 | Early factor VIII exposure and subsequent inhibitor development in children with severe haemophilia A | Haemophilia | Link | |
| 2006 | Thromb Haemost (2006), 96 5: 630-641 | An investigation of the von Willebrand factor genotype in UK patients diagnosed to have type I von Willebrand disease | Thrombosis and haemostasis (PMID 17080221) | Request | Link |
| 2006 | Haemophilia. (2006), 12, (Suppl 1), 16-20 | Clinical implications of emerging pathogens in haemophilia: the variant Creutzfeldt-Jakob disease experience | Haemophilia (PMID 16445813) | None | Link |
| 2005 | Br J Haematol. 2005 Mar;128(6):830-6 | The prevalence of the cysteine1584 variant of von Willebrand factor is increased in type 1 von Willebrand disease: co-segregation with increased susceptibility to ADAMTS13 proteolysis but not clinical phenotype | British Journal of Haematology (PMID 15755288) | Link | |
| 2004 | AIDS. (2004), 18, 525-533 | The impact of HIV on mortality rates in the complete UK haemophilia population | AIDS Official Journal of the International AIDS Society | None | Link |
| 2004 | Cochrane Database of Systematic Reviews 2010, Issue 8. Art. No.: CD004449. DOI: 10.1002/14651858.CD004449.pub3 | Recombinant Factor VIIa concentrate versus plasma derived concentrates for the treatment of acute bleeding episodes in people with Haemophilia A and inhibitors Review Authors: Hind D, Lloyd-Jones M, Makris M, Paisley S | The Cochrane Collaboration (Wiley) | None | |
| 2004 | Blood Coagul Fibrinolysis. 2004 May;15 Suppl 1:S2 | The European acquired haemophilia registry | Blood Coagulation Fibrinolysis (PMID 15166931) | None | Link |
| 2004 | Clin Med. (2004), 4, 54-56 | Gene therapy trials in the UK: is haemophilia a suitable ‘model’? | Clinical Medicine | Link | |
| 2004 | Haemophilia (2004), 10, 390-396 | The Genetics of bleeding disorders: a report on the UK Haemophilia Centre Doctors’ Organisation annual scientific symposium, 10th October 2003 | Haemophilia (PMID 15230955) | None | Link |
| 2004 | J Thromb Haemost. 2004 Jul;2(7):1047-54 | The incidence of factor VIII and factor IX inhibitors in the hemophilia population of the UK and their effect on subsequent mortality, 1977-99 | Journal of Thrombosis and Haemostasis (PMID 15219185) | Link | |
| 2004 | J Thromb Haemost (2004), 2 (1), 205-206 | The factor VIII gene intron 1 inversion mutation: prevalence in severe haemophilia A patients in the UK | Journal of Thrombosis and Haemostasis | PDF
Scroll to page 14 | Link |
| 2002 | AIDS. 2002 Sep 6;16(13):1803-7 | The incidence of lymphoma in the UK haemophilia population between 1978 and 1999 | AIDS Official Journal of the International AIDS Society | PDF | Link |
| 2001 | Haemophilia (2001), 7, 349-359 | Treatment of haemophilia in the United Kingdom 1981 – 1996 | Haemophilia | None | Link |
| 1998 | Haemophilia (1998) 4, 463-473 Review | Towards achieving global haemophilia care–World Federation of Hemophilia programmes | Haemophilia | None | Link |
| 1997 | The Lancet – Volume 350, No. 9092, p1704, 6 December 1997 | New-variant Creutzfeldt-Jakob disease and treatment of haemophilia. Executive Committee of the UKHCDO. United Kingdom Haemophilia Centre Directors’ Organisation | The Lancet | Link | |
| 1997 | Thromb-Haemost (1997), 77 (2), 234-237 | HLA class II profile: a weak determinant of factor VIII inhibitor development in severe haemophilia A. UKHCDO Inhibitor Working Part | Thrombosis and haemostasis (ISSN 0340-6245) | None | None |
| 1997 | The Lancet (1997), 350, 1425-1431 | Mortality from liver cancer and liver disease in haemophilic men and boys in UK given blood products contaminated with hepatitis C | The Lancet | Link | |
| 1995 | Br J Haematol. (1995), 89, 908-910 | The incidence of factor VIII inhibitors in the United Kingdom, 1990-93 | British Journal of Haematology | None | Link |