UKHCDO Guidelines
The table below provides information on where UKHCDO Guidelines have been published and, where applicable, links to the publisher’s website from where the document can be downloaded (in Adobe Acrobat format); these are denoted as “PDF”.
A list of other relevant publications can be found on the ‘Other Publications’ page – click here to visit
A list archived guidelines can be found on the ‘Archived Guidelines’ – click here to visit
You may also download guidelines for working parties and research & publication from the links below
UKHCDO Guidelines for Research & Publication 
Procedure For UKHCDO Guidelines 
| Year | Reference | Title | Journal | Review Date | Document |
|---|---|---|---|---|---|
| 2021 | UKHCDO Document | Immune tolerance induction in severe haemophilia A: A UKHCDO inhibitor and paediatric working party consensus update | Haemophilia 2021 Nov;27(6):932-937 | TBC | |
| 2020 | BSH Document | Guidelines on the use of prophylactic factor replacement for children and adults with Haemophilia A and B. A British Society for Haematology Guideline | 2020, 190, 684–695 | TBC | |
| 2020 | UKHCDO Document | Laboratory coagulation tests and emicizumab treatment. A UKHCDO guideline. | 2020;26:151–155 | TBC | |
| 2019 | UKHCDO Document | Laboratory measurement of factor replacement therapies in the treatment of congenital haemophilia. A UK Haemophilia Centre Doctors’ Organisation guideline | 2020;26:6–16 | TBC | |
| 2019 | UKHCDO Document | Recombinant factor VIII products and inhibitor development in previously untreated patients with severe haemophilia A: Combined analysis of three studies | Haemophilia 2019;25:398-407. | TBC | |
| 2019 | UKHCDO Document | Recommendations for the clinical interpretation of genetic variants and presentation of results to patients with inherited bleeding disorders | Haemophilia 2019 Jan 25 (1) 116-126 | TBC | PDF |
| 2018 | UKHCDO Document Guidance from the UKHCDO Inhibitor Working Party | Treatment of bleeding episodes in haemophilia A complicated by a factor VIII inhibitor in patients receiving Emicizumab. | Haemophilia | TBC | |
| 2018 | 2017 RCOG/UKHCDO | Guideline on management of inherited bleeding disorders in pregnancy | LINK | ||
| 2017 | Haemophilia (2017), 1-10 | Guidelines for the management of acute joint bleeds and chronic synovitis in haemophilia | Haemophilia | TBC | |
| 2017 | UKHCDO Document | UKHCDO protocol for first line immune tolerance induction for children with severe haemophilia A: A protocol from the UKHCDO Inhibitor and Paediatric Working Parties (1st February 2017) | N/A | Feb 2020 | |
| 2016 | Haemophilia (2016), 22, 487–498 | The use of enhanced half-life coagulation factor concentrates in routine clinical practice: guidance from UKHCDO | Haemophilia | TBC | |
| 2014 | Haemophilia, Volume 19, Issue 3, pages e191–e192, May 2013 | Guideline for the Diagnosis and Management of the Rare Coagulation Disorders | Haemophilia | TBC | |
| 2014 | Br J Haematol, 10.1111/bjh.13064 | The diagnosis and management of von Willebrand disease: a United Kingdom Haemophilia Centre Doctors Organization guideline approved by the British Committee for Standards in Haematology | British Journal of Haematology | TBC | |
| 2013 | Haemophilia, Volume 19, Issue 3, pages e191–e192, May 2013 | Update to UKHCDO guidance on vaccination against hepatitis A and B viruses in patients with inherited coagulation factor deficiencies and von Willebrand disease | Haemophilia | TBC | |
| 2013 | British Dental Journal, 215:497-504, 2013 | Guidance on the dental management of patients with haemophilia and congenital bleeding disorders | British Dental Journal | May 2016 | |
| 2013 | Br J Haematol, 160:153-170, 2013 | Diagnosis and treatment of factor VIII and IX inhibitors in congenital haemophilia: (4th edition) | British Journal of Haematology | TBC | |
| 2010 | Br J Haematol, 149, 498-507 | A United Kingdom Haemophilia Centre Doctors’ Organization guideline approved by the British Committee for Standards in Haematology: guideline on the use of prophylactic factor VIII concentrate in children and adults with severe haemophilia A | British Journal of Haematology | September 2014 | |
| 2013 | Br J Haematol, 162:758-773, 2013 | Diagnosis and management of acquired coagulation inhibitors: a guideline from UKHCDO | British Journal of Haematology | TBC | |
| 2009 | UKHCDO Website | Emergency and out of hours care for patients with bleeding disorders – Standards of care for assessment and treatment | UKHCDO Website | September 2013 | |
| 2008 | Haemophilia, 14, 1099-1111 | The molecular analysis of von Willebrand disease: a guideline from the UK Haemophilia Centre Doctors’ Organisation Haemophilia Genetics Laboratory Network | Haemophilia | TBC | |
| 2008 | Haemophilia, 14, 671-684 | Guideline on the selection and use of therapeutic products to treat haemophilia and other hereditary bleeding disorders. A United Kingdom Haemophilia Center Doctors’ Organisation (UKHCDO) guideline approved by the British Committee for Standards in Haematology | Haemophilia | September 2013 | |
| 2006 | Haemophilia, 12, 301-336 | The obstetric and gynaecological management of women with inherited bleeding disorders-review with guidelines produced by a taskforce of UK Haemophilia Centre Doctors’ Organization | Haemophilia | TBC | |
| 2006 | Br J Haematol, 135, 603-633 | A review of inherited platelet disorders with guidelines for their management on behalf of the UKHCDO | British Journal of Haematology | TBC |