UKHCDO Guidelines

The table below provides information on where UKHCDO Guidelines have been published and, where applicable, links to the publisher’s website from where the document can be downloaded (in Adobe Acrobat format); these are denoted as “PDF”.

A list of other relevant publications can be found on the ‘Other Publications’ page – click here to visit

A list archived guidelines can be found on the ‘Archived Guidelines’ – click here to visit

You may also download guidelines for working parties and research & publication from the links below

UKHCDO Guidelines for Research & Publication
Procedure For UKHCDO Guidelines

YearReferenceTitleJournalReview DateDocument
2017UKHCDO DocumentUKHCDO protocol for first line immune tolerance induction for children with severe haemophilia A:
A protocol from the UKHCDO Inhibitor and Paediatric Working Parties
(1st February 2017)
N/AFeb 2020PDF
2016Haemophilia (2016), 22, 487–498The use of enhanced half-life coagulation factor
concentrates in routine clinical practice: guidance from
2015UKHCDO documentGuideline on Clinical Genetics Services for HaemophiliaN/AMay 2018PDF
2014Haemophilia, Volume 19, Issue 3, pages e191–e192, May 2013Guideline for the Diagnosis and Management of the Rare Coagulation DisordersHaemophiliaTBCPDF
2014Br J Haematol, 10.1111/bjh.13064The diagnosis and management of von Willebrand disease: a United Kingdom Haemophilia Centre Doctors Organization guideline approved by the British Committee for Standards in HaematologyBritish Journal of HaematologyTBCPDF
2013Haemophilia, Volume 19, Issue 3, pages e191–e192, May 2013Update to UKHCDO guidance on vaccination against hepatitis A and B viruses in patients with inherited coagulation factor deficiencies and von Willebrand diseaseHaemophiliaTBCPDF
2013British Dental Journal, 215:497-504, 2013Guidance on the dental management of patients with haemophilia and congenital bleeding disordersBritish Dental JournalMay 2016PDF
2013Br J Haematol, 160:153-170, 2013Diagnosis and treatment of factor VIII and IX inhibitors in congenital haemophilia: (4th edition)British Journal of HaematologyTBCPDF
2013Br J Haematol, 162:758-773, 2013Diagnosis and management of acquired coagulation inhibitors: a guideline from UKHCDOBritish Journal of HaematologyTBCPDF
2011Br J Haematol, 154, 208-215Guideline on the management of haemophilia in the fetus and neonateBritish Journal of HaematologyOctober 2015PDF
2010CMGS WebsitePractice Guidelines for the Molecular Diagnosis of Haemophilia ACMGS WebsiteTBCPDF
2010CMGS WebsitePractice Guidelines for the Molecular Diagnosis of Haemophilia BCMGS WebsiteTBCPDF
2010Br J Haematol, 149, 498-507A United Kingdom Haemophilia Centre Doctors’ Organization guideline approved by the British Committee for Standards in Haematology: guideline on the use of prophylactic factor VIII concentrate in children and adults with severe haemophilia ABritish Journal of HaematologySeptember 2014PDF
2009UKHCDO WebsiteEmergency and out of hours care for patients with bleeding disorders – Standards of care for assessment and treatmentUKHCDO WebsiteSeptember 2013PDF
2008Haemophilia, 14, 1099-1111The molecular analysis of von Willebrand disease: a guideline from the UK Haemophilia Centre Doctors’ Organisation Haemophilia Genetics Laboratory NetworkHaemophiliaTBCPDF
2008Haemophilia, 14, 671-684Guideline on the selection and use of therapeutic products to treat haemophilia and other hereditary bleeding disorders. A United Kingdom Haemophilia Center Doctors’ Organisation (UKHCDO) guideline approved by the British Committee for Standards in HaematologyHaemophiliaSeptember 2013PDF
2006Haemophilia, 12, 301-336The obstetric and gynaecological management of women with inherited bleeding disorders-review with guidelines produced by a taskforce of UK Haemophilia Centre Doctors’ OrganizationHaemophiliaTBCPDF
2006Br J Haematol, 135, 603-633A review of inherited platelet disorders with guidelines for their management on behalf of the UKHCDOBritish Journal of HaematologyTBCPDF
2005Haemophilia, 11, 145-163A framework for genetic service provision for haemophilia and other inherited bleeding disordersHaemophiliaTBCPDF