The National Haemophilia Database
The UKHCDO is required by the Department of Health to collect data on diagnosis, management and complications of bleeding disorders. This information is kept in the National Haemophilia Database, which is located in Manchester.
The NHD – Your Questions Answered (revised 2015)
An updated guide has been produced that explains the National Haemophilia Database and is available in electronic format below. Click on the links below to download the leaflets.
Information Governance Assessment Report – 2017
Information regarding the Information Governance Assessment Report is available in electronic format below.
National Haemophilia Database Dataset
This dataset lists the information the Department of Health requires the National Haemophilia Database to collect in 2018.
This includes lists of additional data points collected if an adverse event, such as a new factor VIII inhibitor, is reported to the database.
This list bears no relationship to data collected in previous years and should not be taken as a guide to the information collected in the past. Data collected in the earlier years of the database was very limited but has widened gradually with the passage of time.
Download the NHD Dataset – 650kb
Obtaining Data from the National Haemophilia Database
To request data from the the National Haemophilia Database, complete the form.
The procedure for reviewing an application can be viewed below.
Request for data from the NHD flow
NHD Contact Details
|Ms Lynne Dewhurst|
|City View House|
|5 Union Steet|
|Tel : 0161 277 7924|
Fax : 0161 277 7927