The National Haemophilia Database


The UKHCDO is required by the Department of Health to collect data on diagnosis, management and complications of bleeding disorders. This information is kept in the National Haemophilia Database, which is located in Manchester.

 The NHD – Your Questions Answered (revised 2015)

An updated guide has been produced that explains the National Haemophilia Database and is available in electronic format below. Click on the links below to download the leaflets.

‘Information Leaflet for Patients and their Relatives from the NHD’Adobe Acrobat document 515kb

‘Information Leaflet for Parents and their Children from the NHD’Adobe Acrobat document 496kb

 Information Governance Assessment Report – June 2013

Information regarding the Information Governance Assessment Report is available in electronic format below.

Download ‘Information Governance Assessment Report’Adobe Acrobat document 117kb

National Haemophilia Database Dataset

The current database dataset.

Download the NHD DatasetAdobe Acrobat document 650kb

Obtaining Data from the National Haemophilia Database

To request data from the the National Haemophilia Database, complete the form.

The procedure for reviewing an application can be viewed below.

Download the application for NHD data form Microsoft Word document 650kb

Request for data from the NHD flow

NHD Contact Details

  • Administrator:

  • Ms Lynne Dewhurst
  • UKHCDO
  • City View House
  • 5 Union Steet
  • Ardwick
  • Manchester
  • M12 4JD
  • Tel : 0161 277 7991
    Fax : 0161 277 7927
    Email: support@ukhcdo.org