The National Haemophilia Database

The UKHCDO is required by the Department of Health to collect data on diagnosis, management and complications of bleeding disorders. This information is kept in the National Haemophilia Database, which is located in Manchester. You need to be on the secure NHS network to access the database. 

 The NHD – Your Questions Answered (revised 2015)

An updated guide has been produced that explains the National Haemophilia Database and is available in electronic format below. Click on the links below to download the leaflets.

‘Information Leaflet for Patients and their Relatives from the NHD’Adobe Acrobat document 515kb

‘Information Leaflet for Parents and their Children from the NHD’Adobe Acrobat document 496kb

 Information Governance Assessment Report – 2017

Information regarding the Information Governance Assessment Report is available in electronic format below.

Download ‘Information Governance Assessment Report’Adobe Acrobat document 117kb

National Haemophilia Database Dataset

This dataset lists the information the Department of Health requires the National Haemophilia Database to collect in 2018.

This includes lists of additional data points collected if an adverse event, such as a new factor VIII inhibitor, is reported to the database.

This list bears no relationship to data collected in previous years and should not be taken as a guide to the information collected in the past.  Data collected in the earlier years of the database was very limited but has widened gradually with the passage of time.

Download the NHD DatasetAdobe Acrobat document 650kb

Obtaining Data from the National Haemophilia Database

To request data from the the National Haemophilia Database, complete the form.

The procedure for reviewing an application can be viewed below.

Download the application for NHD data form Microsoft Word document 650kb

Request for data from the NHD flow

NHD Contact Details

Administrator:
Ms Lynne Dewhurst
UKHCDO
City View House
5 Union Steet
Ardwick
Manchester
M12 4JD
Tel : 0161 277 7924
Fax : 0161 277 7927
Email: support@ukhcdo.org