Patients Page

This section of the UKHCDO website is dedicated to Haemophilia patients and their families and aims to provide comprehensive and useful information associated with Haemophilia, bleeding disorders and the National Haemophilia Database (NHD).

These documents are currently available for viewing & download:

• vCJD and Plasma Products

  Please review the below documents from the Department of Health regarding vCJD.
  Download the Patients letter
  Information for people who have an increased risk of CJD
  Who has an increased risk of CJD?

• Data Set information

  This form discloses the information the Department of Health requires the National Haemophilia Database to collect.
  Download the Data Set here

• Access to National Haemophilia Database health records application form

  An application form which allows patients to request their Health Records from the National Haemophilia Database. Included in this document are all the necessary details of how to do this.
  Download the application form here

• Patient Information Leaflet (revised for 2007)

  This important leaflet answers many of the questions patients and their relatives may have about the National Haemophilia Database.
  Download 'The National Haemophilia Database - Your Questions Answered'

• Haemophilia Centre Contact Information

  A comprehensive list of the UK & Northern Ireland Haemophilia Centres details all the contact information patients may need
  Alphabetical list of Haemophilia Centre contacts
  Haemophilia Centre contacts sorted by area

We have compiled a list of websites aimed at the patient, carer & family with information on bleeding disorders.
These can be found on our Links page

Further to this, the following will be available for download soon:

• The final triennial audit report 2006.

If there is any information that has been left out of this section that will be of great use, please contact us and we will do all we can to help.