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  UKHCDO Guidelines - Other Publications



The table below provides information on where Other relevant publications or guidelines have been published, and where applicable  links to download the documents (in Adobe Acrobat format), these are denoted with a .

A list of UKHCDO Guidelines can be found on the 'UKHCDO Guidelines' page - click here to visit


You may also download guidelines for working parties and research & publication from the links below
UKHCDO Guidelines for Working Parties
UKHCDO Guidelines for Research & Publication

 

Year Ref Title Journal (ISSN/PMID) pdf? link
Additional Information To view a document, click the pdf icon, if we are unable to provide a link, you may email a request to us by clicking the email icon, you may also visit the web site by clicking the link icon
1995 Br J Haematol. (1995), 89, 908-910 The incidence of factor VIII inhibitors in the United Kingdom, 1990-93 British Journal of Haematology (ISSN 7772532)
Paper Only
unavailable
1997 The Lancet (1997), 350, 1425-1431 Mortality from liver cancer and liver disease in haemophilic men and boys in UK given blood products contaminated with hepatitis C The Lancet (PMID 9371165)
Paper only
unavailable
1997 The Lancet (1997), 350, 1704 New-variant Creutzfeldt-Jakob disease and treatment of haemophilia. Executive Committee of the UKHCDO. United Kingdom Haemophilia Centre Directors' Organisation The Lancet (PMID 9400534/ISSN 0140-6736)
No
unavailable
1997 Thromb-Haemost (1997), 77 (2), 234-237 HLA class II profile: a weak determinant of factor VIII inhibitor development in severe haemophilia A. UKHCDO Inhibitor Working Part Thrombosis and haemostasis (ISSN 0340-6245)
No
unavailable
1998 Haemophilia (1998) 4, 463-73 Review Towards achieving global haemophilia care--World Federation of Hemophilia programmes Haemophilia (PMID 9873776)
download the pdf
2001 Haemophilia (2001), 7, 349-359 Treatment of haemophilia in the United Kingdom 1981 - 1996 Haemophilia
download this pdf
2002 AIDS. 2002 Sep 6;16(13):1803-7 The incidence of lymphoma in the UK haemophilia population between 1978 and 1999 AIDS (PMID 12218393)
No
unavailable
2004 AIDS. (2004), 18, 525-533 The impact of HIV on mortality rates in the complete UK haemophilia population AIDS (PMID 15090806/ISSN0269-9370)
Paper Only
unavailable
2004 Art. No.: CD004449. DOI: 10.1002/14651858.CD004449.pub2 Recombinant Factor VIIa concentrate versus plasma derived concentrates for the treatment of acute bleeding episodes in people with Haemophilia A and inhibitors Review
Authors: Hind D, Lloyd-Jones M, Makris M, Paisley S
Cochrane Collaboration (ISSN 1464-780X)
Paper Only
unavailable
2004 Blood Coagul Fibrinolysis. 2004 May;15 Suppl 1:S2 The European acquired haemophilia registry Blood Coagulation Fibrinolysis (PMID 15166931)
unavailable
unavailable
2004 Clin Med. (2004), 4, 54-56 Gene therapy trials in the UK: is haemophilia a suitable 'model'? Clinical Medicine
Paper Only
unavailable
2004 Haemophilia (2004), 10, 390-396 The Genetics of bleeding disorders: a report on the UK Haemophilia Centre Doctors' Organisation annual scientific symposium, 10th October 2003 Haemophilia (PMID 15230955)
download this document
2004 J Thromb Haemost. 2004 Jul;2(7):1047-54 The incidence of factor VIII and factor IX inhibitors in the hemophilia population of the UK and their effect on subsequent mortality, 1977-99 Journal of Thrombosis and Haemostasis (PMID 15219185)
visit web site
2004 J Thromb Haemost (2004), 2 (1), 205-206 The factor VIII gene intron 1 inversion mutation: prevalence in severe haemophilia A patients in the UK Journal of Thrombosis and Haemostasis
visit web site
2005 Br J Haematol. 2005 Mar;128(6):830-6 The prevalence of the cysteine1584 variant of von Willebrand factor is increased in type 1 von Willebrand disease: co-segregation with increased susceptibility to ADAMTS13 proteolysis but not clinical phenotype British Journal of Haematology (PMID 15755288)
pdf unavailable
visit web site
2006 Haemophilia. (2006), 12, (Suppl 1), 16-20 Clinical implications of emerging pathogens in haemophilia: the variant Creutzfeldt-Jakob disease experience Haemophilia (PMID 16445813)
download this document
2006 Thromb Haemost (2006), 96 5: 630-641 An investigation of the von Willebrand factor genotype in UK patients diagnosed to have type I von Willebrand disease Thrombosis and haemostasis (PMID 17080221)
visit web site
2007 Haemophilia (2007), 13, 149-155 Early factor VIII exposure and subsequent inhibitor development in children with severe haemophilia A Haemophilia
visit web site