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The table below
provides information on where Other relevant publications or guidelines have been published, and where applicable links to download the documents (in Adobe Acrobat format), these are denoted with a
.
A list of UKHCDO Guidelines can be found on the 'UKHCDO Guidelines' page - click here to visit
You may also download guidelines for working parties and research & publication from the links below
UKHCDO Guidelines for Working Parties ![]()
UKHCDO Guidelines for Research & Publication
| Year | Ref | Title | Journal (ISSN/PMID) | pdf? | link |
|---|---|---|---|---|---|
| Additional Information | To view a document, click the icon, if we are unable to provide a link, you may email a request to us by clicking the icon, you may also visit the web site by clicking the icon |
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| 1995 | Br J Haematol. (1995), 89, 908-910 | The incidence of factor VIII inhibitors in the United Kingdom, 1990-93 | British Journal of Haematology (ISSN 7772532) | Paper Only |
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| 1997 | The Lancet (1997), 350, 1425-1431 | Mortality from liver cancer and liver disease in haemophilic men and boys in UK given blood products contaminated with hepatitis C | The Lancet (PMID 9371165) | Paper only |
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| 1997 | The Lancet (1997), 350, 1704 | New-variant Creutzfeldt-Jakob disease and treatment of haemophilia. Executive Committee of the UKHCDO. United Kingdom Haemophilia Centre Directors' Organisation | The Lancet (PMID 9400534/ISSN 0140-6736) | ![]() |
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| 1997 | Thromb-Haemost (1997), 77 (2), 234-237 | HLA class II profile: a weak determinant of factor VIII inhibitor development in severe haemophilia A. UKHCDO Inhibitor Working Part | Thrombosis and haemostasis (ISSN 0340-6245) | ![]() |
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| 1998 | Haemophilia (1998) 4, 463-73 Review | Towards achieving global haemophilia care--World Federation of Hemophilia programmes | Haemophilia (PMID 9873776) | ||
| 2001 | Haemophilia (2001), 7, 349-359 | Treatment of haemophilia in the United Kingdom 1981 - 1996 | Haemophilia | ||
| 2002 | AIDS. 2002 Sep 6;16(13):1803-7 | The incidence of lymphoma in the UK haemophilia population between 1978 and 1999 | AIDS (PMID 12218393) | ![]() |
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| 2004 | AIDS. (2004), 18, 525-533 | The impact of HIV on mortality rates in the complete UK haemophilia population | AIDS (PMID 15090806/ISSN0269-9370) | Paper Only |
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| 2004 | Art. No.: CD004449. DOI: 10.1002/14651858.CD004449.pub2 | Recombinant Factor VIIa concentrate versus plasma derived concentrates for the treatment of acute bleeding episodes in people with Haemophilia A and inhibitors Review
Authors: Hind D, Lloyd-Jones M, Makris M, Paisley S |
Cochrane Collaboration (ISSN 1464-780X) | Paper Only |
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| 2004 | Blood Coagul Fibrinolysis. 2004 May;15 Suppl 1:S2 | The European acquired haemophilia registry | Blood Coagulation Fibrinolysis (PMID 15166931) | ![]() |
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| 2004 | Clin Med. (2004), 4, 54-56 | Gene therapy trials in the UK: is haemophilia a suitable 'model'? | Clinical Medicine | Paper Only |
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| 2004 | Haemophilia (2004), 10, 390-396 | The Genetics of bleeding disorders: a report on the UK Haemophilia Centre Doctors' Organisation annual scientific symposium, 10th October 2003 | Haemophilia (PMID 15230955) | ||
| 2004 | J Thromb Haemost. 2004 Jul;2(7):1047-54 | The incidence of factor VIII and factor IX inhibitors in the hemophilia population of the UK and their effect on subsequent mortality, 1977-99 | Journal of Thrombosis and Haemostasis (PMID 15219185) | ||
| 2004 | J Thromb Haemost (2004), 2 (1), 205-206 | The factor VIII gene intron 1 inversion mutation: prevalence in severe haemophilia A patients in the UK | Journal of Thrombosis and Haemostasis | ||
| 2005 | Br J Haematol. 2005 Mar;128(6):830-6 | The prevalence of the cysteine1584 variant of von Willebrand factor is increased in type 1 von Willebrand disease: co-segregation with increased susceptibility to ADAMTS13 proteolysis but not clinical phenotype | British Journal of Haematology (PMID 15755288) | ![]() |
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| 2006 | Haemophilia. (2006), 12, (Suppl 1), 16-20 | Clinical implications of emerging pathogens in haemophilia: the variant Creutzfeldt-Jakob disease experience | Haemophilia (PMID 16445813) | ||
| 2006 | Thromb Haemost (2006), 96 5: 630-641 | An investigation of the von Willebrand factor genotype in UK patients diagnosed to have type I von Willebrand disease | Thrombosis and haemostasis (PMID 17080221) | ||
| 2007 | Haemophilia (2007), 13, 149-155 | Early factor VIII exposure and subsequent inhibitor development in children with severe haemophilia A | Haemophilia | ||