UKHCDO Annual General Meeting 2016
Welcome to the UKHCDO Site
The United Kingdom Haemophilia Centre Doctors’ Organisation is an association of medical practitioners who work within the Haemophilia Centres of England, Scotland, Northern Ireland or Wales and have an interest in the care of people with Haemophilia or other inherited bleeding disorders
National Haemophilia Database (NHD)
The UKHCDO is required by the Department Of Health to collect data. This information is kept in the National Haemophilia Database (NHD), which is located in Manchester.
Providing information associated with Haemophilia, bleeding disorders and the National Haemophilia Database for patients and their families
Genetics Diagnostic Service Directory
Contact information for molecular diagnostic services for inherited bleeding disorders.
The NIHR Clinical Research Network deliver for Haemophilia
Haemophilia is a rare disease affecting about 6000 people in the UK. Recently, many new treatments for haemophilia have been developed resulting in the need for many competing studies to be performed in the UK simultaneously. Delivery of these studies, on time and to target, has been successfully coordinated by the NIHR Clinical Research Network
National Institute for Health Research:
UK Comprehensive Research Network
Support for studies can be accessed through your Comprehensive Local Research Network (CLRN) in England with other networks in Devolved Nations. Many of these networks will have a local haematology lead. If you are interested to see what studies are currently on the national research portfolio and eligible for UK CRN support, click onhttp://public.ukcrn.org.uk/search/ and search for studies of interest by entering a search term (eg haemophilia, platelets etc) in the title/acronym box and clicking “find”.
If you require Help or Information
If you would like further information about the UKHCDO, please contact the secretariat