Recently Added

    UKHCDO Statement following the announcement of a public inquiry to investigate historical cases of infection from blood and blood products

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    UKHCDO Statement in response to SIPPET study

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    Guidelines for Management of Joint Bleeds and Chronic Synovitis

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    Welcome to the UKHCDO Site

    The United Kingdom Haemophilia Centre Doctors’ Organisation is an association of medical practitioners who work within the Haemophilia Centres of England, Scotland, Northern Ireland or Wales and have an interest in the care of people with Haemophilia or other inherited bleeding disorders

    National Haemophilia Database (NHD)

    The UKHCDO is required by the Department Of Health to collect data. This information is kept in the National Haemophilia Database (NHD), which is located in Manchester.

    Patient Information

    Providing information associated with Haemophilia, bleeding disorders and the National Haemophilia Database for patients and their families and also the UKHCDO Ltd Privacy Policy.

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    Haemophilia Centre Contact List

    Contact information for haemophilia centres throughout the UK & Northern Ireland, view by area or alphabetically

    Haemophilia Centre Area List

    Haemophilia Centre Alphabetical List

    Genetics Diagnostic Service Directory

    Contact information for molecular diagnostic services for inherited bleeding disorders.

    The NIHR Clinical Research Network deliver for Haemophilia

    Haemophilia is a rare disease affecting about 6000 people in the UK. Recently, many new treatments for haemophilia have been developed resulting in the need for many competing studies to be performed in the UK simultaneously. Delivery of these studies, on time and to target, has been successfully coordinated by the NIHR Clinical Research Network

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    National Institute for Health Research:

    UK Comprehensive Research Network

    The UK CRN provides a world-class research infrastructure embedded in the NHS to support participation in high quality non commercial research and commercial studies across the UK. 

    Support for studies can be accessed through your Comprehensive Local Research Network (CLRN) in England with other networks in Devolved Nations. Many of these networks will have a local haematology lead. If you are interested to see what studies are currently on the national research portfolio and eligible for UK CRN support, click on http://public.ukcrn.org.uk/search/ and search for studies of interest by entering a search term (eg haemophilia, platelets etc) in the title/acronym box and clicking “find”.

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    If you require Help or Information

    If you would like further information about the UKHCDO, please contact the secretariat

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