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National Haemophilia Database (NHD) |
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The UKHCDO is required by the Department Of Health to collect data. This information is kept in the National Haemophilia Database (NHD), which is located in Manchester.
Click here to read more
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Patient Information |
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Providing information associated with Haemophilia, bleeding disorders and the National Haemophilia Database for patients and their families
Click here to read more |
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Genetics Diagnostic Service Directory |
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Contact information for molecular diagnostic services for inherited bleeding disorders.
Click here to read more |
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The NIHR Clinical Research Network deliver for Haemophilia
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Haemophilia is a rare disease affecting about 6000 people in the UK. Recently, many new treatments for haemophilia have been developed resulting in the need for many competing studies to be performed in the UK simultaneously. Delivery of these studies, on time and to target, has been successfully coordinated by the NIHR Clinical Research Network
Click here to read more |
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National Institute for Health Research: UK Comprehensive Research Network (CRN) |
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The UK CRN provides a world-class research infrastructure embedded in the NHS to support participation in high quality non commercial research and commercial studies across the UK.
Support for studies can be accessed through your Comprehensive Local Research Network (CLRN) in England with other networks in Devolved Nations. Many of these networks will have a local haematology lead. If you are interested to see what studies are currently on the national research portfolio and eligible for UK CRN support, click on http://public.ukcrn.org.uk/search/ and search for studies of interest by entering a search term (eg haemophilia, platelets etc) in the title/acronym box and clicking "find".
Click here to view flyer |
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If you require help or information
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If you would like further information about the UKHCDO, please contact the secretariat
Click here to read more |
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